My World in Words
Welcome to my blog, the place I try to put my inner world into words, aiming to share wisdom gained through experience, hope, mistakes, and everything that makes life both beautiful and messy.
FYI - Posts will appear haphazardly and on no set schedule other than the one life sets out for me. Things get a little chaotic at times, but I will always return eventually.
A day in the life of a carer.
Some of the best advice I got was to speak of my child and the illness separately. Her illness didn’t define her, and it was the illness, not her, who was wreaking havoc with our lives. Our beautiful daughter Simone was still here. Our job was to love and care for her while we battled this illness together. It is a long journey and definitely a dirt road with many pot poles and dead ends. My hope and prayer that sustained me was that each day we battled through with Simone was another day with her still here, and another day closer to beating this damn thing!